Patient Registry

The United Kingdom Primary Sjögren's Syndrome Registry (UKPSSR) is a national research biobank of people with Primary Sjögren's Syndrome.

Grant Funding Received
4 million
Registered Patients
183
Questionnaire Satisfaction
90%

Help us, help you

With your help, we can make a difference in the lives of those with Sjögren's Syndrome. By filling out the questionnaire, you are directly providing more information to help us understand the disease and how to better treat it.

Help Those in Need

Your answers will directly work towards helping others with Sjogrens. Click here to learn more about the research we are doing and how your answers are helping us to help others

How it works

Want updates on our progress?

Sign up for our newsletter.

We care about your data. Read our privacy policy.