For Researchers

The UKPSSR ultimately aims to foster collaborative research nationally and internationally. A steering committee consisting of experts in the field of primary Sjögren's syndrome (pSS) is responsible for reviewing and approving applications from research organisations for the use of clinical data and samples of the UKPSSR.

A number of research programmes/proposals were discussed at the conception of the UKPSSR, the full list of these projects can be found on the following link:

Proposed Research Studies This is a downloadable Word document

Researchers are encouraged to discuss with the UKPSSR any future research projects that will further our understanding of the pathogenesis of pSS and improve the treatment of pSS sufferers.

All researchers planning to use the data/samples for research will need to apply to the steering committee using the standardised application form:

Application Form This is a downloadable Word document

A list of the research projects that have been approved or are under consideration for approval can be found on the link below:

Current research projects This is a downloadable Word document