Sjögren's Registry

The United Kingdom Primary Sjögren's Syndrome Registry (UKPSSR) is a national research biobank of people with Primary Sjögren's Syndrome.

Grant Funding Received
4 million
Registered Patients
183
Questionnaire Satisfaction
90%

Help us, help you

With your help, we can make a difference in the lives of those with Sjögren's Syndrome. By filling out the questionnaire, you are directly providing more information to help us understand the disease and how to better treat it.

Recruitment is regrettably closed at the moment. Please contact us here to be updated when it reopens.

Sign Up

Click here to register as a patient, from there you will receive an email with a link to complete your registration and subsequently a questionnaire.

Fill Out a Questionnaire

You may take as much time as you like to fill out the questionnaire. You may save your progress and return to it at any time. The questionnaire is broken down into sections to make it easier to complete.

Help Those in Need

Your answers will directly work towards helping others with Sjogrens. Click here to learn more about the research we are doing and how your answers are helping us to help others

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